Visit these websites for further resources and support information.
Beyond BookSmart Executive Function Strategies for Success, empowers students to manage themselves effectively both in school and beyond by providing tools, strategies and mentoring that lead to a lifetime of success.
Guide to Parenting Resources – 50 high-quality and informative parenting resources for children ages 0 to 18 that can help you become a better parent.
QSAC (Quality Services for the Autism Community, serving NYC and Long Island) – Their Information for Parents section provides important information regarding Care Coordination Organizations (CCOs), updates about the NYS Autism Spectrum Disorders Advisory Board and other valuable information.
Long Island Family Support Services Advisory Council
Family Support Services Grant Programs – The Grant List is comprised of agencies that provide Family Support Services to individuals eligible for OPWDD services who do not necessarily have Medicaid. It lists Non-Medicaid Service Coordinators. This is a comprehensive listing of all Family Support Grants in Nassau and Suffolk Counties. Services are funded by the New York State Office for People with Developmental Disabilities (OPWDD) through the local Long Island Office.
NDSS – The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome – read more at www.ndss.org
NICHCY – (National Information Center for Children and Youth with Disabilities) (www.nichcy.org) Phone:1-800-695-0285
FRIENDSHIP CIRCLE – Indispensable Websites for Parents of Children with Autism www.friendshipcircle.org
DISABILITY SCOOP – The latest in disability news (https://www.disabilityscoop.com)
UNDERSTOOD.ORG – 15 nonprofit organizations have joined forces to support parents of the one in five children with learning and attention issues throughout their journey.
Click here for DISABILITY & SPECIAL EDUCATION ACRONYMS
NYSED – New York State special education department www.p12.nysed.gov/specialed/
SELF-DIRECTION, A PRACTICAL GUIDE FOR FAMILIES
Self Determination Coalition has just launched a brand new Self-Direction in New York, A PRACTICAL GUIDE FOR FAMILIES, introduced at a presentation hosted by Resources for Children with Special Needs. Please visit their website for updated Steps to Transition to a Self-Determined Life, Updated FAQs, the film Self-Determined Lives, and, the Guide by the NYSELFD Advocacy Committee. Visit www.nyselfd.org for details.
SWIFT (Schoolwide Integrated Framework for Transformation) is a national K-8 center that provides academic and behavioral support to promote the learning and academic achievement of all students, including students with disabilities and those with the most extensive needs.
I AM DETERMINED – www.imdetermined.org
The I’m Determined project, a state directed project funded by the Virginia Department of Education, focuses on providing direct instruction, models, and opportunities to practice skills associated with self-determined behavior. This project facilitates youth, especially those with disabilities to undertake a measure of control in their lives, helping to set and steer the course rather than remaining the silent passenger.
THE INTERNATIONAL DYSLEXIA ASSOCIATION OF LONG ISLAND – www.lidyslexia.org
EVERYONE READING – www.everyonereading.org
Is a the leading resource for dyslexia and related learning disabilities. Everyone Reading instructs educators, tutors children and supports parents. They provide professional development, information, tools, support and research. Everyone Reading advances the lives of children and adults with dyslexia and related learning disabilities by providing the resources they need to learn to become successful readers, writers and spellers. Everyone Reading strives to lessen, and eventually eliminate, the stigma associated with dyslexia and LD. They work to demonstrate to the community that dyslexia and LD can affect anyone–including people with average and above-average intelligence.
DYSLEXIE FONT – www.dyslexiefont.com
Dyslexie font is a typeface for people with dyslexia. After installation, you can use the font in all the software programs you know. You can also select the font for your internet browser, and it is completely free for individual users!
LONG ISLAND COMMUNITIES OF PRACTICE (LICoP)
We are a not-for-profit organization offering year-round inclusive educational, social and recreational programs to individuals with disabilities and their families on Long Island. These programs are offered free of charge and include sporting events, exercise, exposure to the arts, social gatherings and educational program supports.
Learning Ally is a national not-for-profit organization that supports students and parents of students with a reading and learning disabilities by giving them access to an online library that provides audio books and text books. To become a member, please visit their website www.learningally.org.
MAGNUS CARDS – www.magnusmode.com
Collect step-by-step skill guides with Magnus and build a library for exploring the world with confidence and independence.
Parent to Parent of NYS – Free Webinars these are a great way to get important information right from your home. Click here for the current list of Webinars.
Short for “Population Earth”, Pop Earth is non-profit focused on providing holistic health treatments and options for those with special needs, including Autism & other developmental disorders. We are based on Long Island, New York and have partners all across the country.
Education, Coaching, and Support for Parents, Students, and Teachers
ADHD Expert Cindy Goldrich, Ed.M., ACAC
AcademicHelp.net – a resource for students, teachers and people who would like to improve their academic writing skills. The website consists of valuable guides, writing samples and ideas that help eager learners to develop. 120 000 visitors per month use these materials and get in touch with our experts to get some help with their academic assignments.
Rethink aims to place evidence-based treatment solutions in the hands of every educator, clinician or parent working with a child with special needs. Rethink Autism provides educational treatment solutions for children with autism spectrum disorders, aspergers, and pdd-nos learning disabilities. Please visit their website, www.rethinkfirst.com
Time Timer – Time Timer® is an innovative visual timer designed to “show” the passage of time through the use of a patented red disk that disappears as time elapses.
HEALTH AND WELLBEING
AngelSense is the only GPS & voice monitoring solution designed exclusively for children with special needs.
Birdhouse is an award winning app for parents, teachers and caregivers that gives you the tool to organize medicines, supplements, & therapies, and easily keep track of things like food, behaviors, moods, sleeping habits, & more.
IF I NEED HELP www.ifineedhelp.org
Have your special person wear or carry the iD patch, pins, clips, iD cards, shoe tags, or other iD products.
When lost, the code can be scanned by a smartphone/tablet or the number associated with the code can be entered manually into the home page of the If I Need Help site to access the caretakers contact information. Profiles can emailed and forwarded to searchers.
Comprehensive guide to mental health services for children and their families
This user’s guide to children’s mental health services on Long Island is a comprehensive guide to mental health services for children and their families. The guide provides information on the children’s mental health system and on how to find the most appropriate services for a child.
T.O.U.C.H. (Therapeutic Outreach Uniting Community Health)
The Therapeutic Outreach Uniting Community Health (TOUCH) platform is the first ever pilot program of a New York State, statewide housing and employment database, that works directly with government agencies to identify and publicize housing and employment vacancies, directly to the person that will be the recipient of services. The TOUCH web-based platform will be free and accessible to everyone. People with intellectual and developmental disabilities, with the assistance of their support staff, families and friends, will be able to log on to a website and search all of the housing and employment opportunities available to them and subsequently, self-direct their services by referring themselves for these opportunities, provided they have successfully gone through OPWDD’s Front Door. To learn more about this exciting program, click here. Registration on TOUCH began on April 15, 2015 at www.touchnys.org.
CENTRAL NASSAU GUIDANCE AND COUNSELING SERVICES – Each year, an estimated 432,000 Long Island residents suffer from some form of mental health disorder. But many suffer in silence—because most can’t ask for help, especially those who need help the most. That’s why it is so important for friends, families, and neighbors to be the voice of those who can’t or won’t seek help for themselves.
R.E.A.C.H. PROGRAM (Return Every Adult & Child Home) – The REACH registry is a law enforcement-maintained database of children and adults with cognitive disorders that make them more likely to become a missing person and that potentially limit their ability to communicate. Individuals who are affected by Alzheimer’s, dementia, autism, Down Syndrome, mental disabilities, traumatic brain injuries, etc. are examples of people who are prime candidates for the registry. This database is maintained by the Asset Forfeiture and Intelligence unit at the Police Academy and includes photographs, biographical information, and other information pertinent for locating and dealing with registrants such as likely destinations and idiosyncrasies. The REACH registry is an expansion of the Silver Alert System that also assists the Department with a swift response to missing person calls.
SMART 911 – The Nassau County Police Department has developed “Smart 911” which allows residents to create a free Safety Profile for themselves and family members that includes information they feel would be necessary for 9-1-1 to have in an emergency. Details, such as family members’ names, photos, medical conditions, and allergies, along with emergency contacts, will be immediately available to 9-1-1 when a call is placed.
PERSONAL EMERGENCY PROFILE SHEET (DOWNLOAD; National Autism Association)
WINTHROP UNIVERSITY HOSPITAL NEW DOWN SYNDROME PROGRAM – The Winthrop Down Syndrome Program (WDSP) provides compassionate, comprehensive and coordinated care for children with Down syndrome. The uniqueness of the program is that the patient is able to see a variety of specialists during the initial visit at the Research and Academic Center of Winthrop University Hospital. The objective of the visit is to identify the age specific needs and address medical issues using a multidisciplinary team approach. Click here to read more about our new program!
WINTHROP UNIVERSITY HOSPITAL S.T.A.R. PROGRAM – The STAR program provides enhanced care for children with special needs. When your child is hospitalized or has a procedure at Winthrop, he or she will be paired with a Child Life Team member. Team members are specially trained in child behavior, development and the care of children with complex medical and behavioral issues. Their mission is to provide the highest quality care to all children with chronic care needs (Autism Spectrum and Down Syndrome) newborns through 18, in a compassionate, family-centered, coordinated care environment. To enroll your child click here.
ASSISTIVE TECHNOLOGY RESOURCE LINKS
TRAID (Technology Related Assistance for Individuals with Disabilities) Long Island is dedicated to the dissemination of information about assistive technology and providing opportunities for individuals to enhance their lives through accessible and affordable assistive technology.
SPECIAL NEEDS APPS
The most detailed app guide for special needs families, speech therapists, occupational therapists, social workers and teachers! This guide breaks down apps by skill set so you can easily find and buy apps that most benefit your child. Great for kids with autism spectrum disorder, ADHD, apraxia, learning disability, sensory issues and more. Included are apps for iPad, iPhone, iPod touch and some Android apps. Click here for the APP GUIDE.
Pictello – An easy way to create, playback and share visual stories and talking books.
APPS For Auditory Processing
What’s the sound? By Different Roads to Learning
Touch the Sound. By Innovative mobile apps
Drums Challenge Charlie Morgan by Bulkypix
Auditory Workout By Virtual Speech Center Inc. Open iTunes to buy and download apps. Helps auditory comprehension and auditory processing students. This app has the ability to add background noise with a sliding volume lever.
Feather Squadron is an iPad app designed to measure a range of auditory processing abilities that are shown in the research literature (many studies) to be important for language, reading, and education. It was designed for children (from age 5) but is also normed and can be used for adults. After playing the short 5 minute screening or a more-in-depth test using a series of mini-games (which takes less than 30 minutes), the results of the assessment are automatically sent to your profile on this website where you are able to view in a professional report including recommendations.
Awesome Apps for Executive Functioning
Dragon Dictation – free app for iPad or iPhone, easy-to-use voice recognition application that allows you to easily speak and instantly see your text or email messages. Five (5) times faster than typing on the keyboard!
iAnnotate – available at the app store, “Light years ahead of the other PDF annotation apps,” “an indispensable tool to have,” and “the reason I bought an iPad.” Go paperless and utilize one of the best apps for productivity available!
iStudiezPro – available at the app store, award winning app 2009-2010 – Best Young Adults and Best Parenting App for iPad! Best App Ever Award Winner in Education category!
CourseNotes – available at the app store, great for students – you can add your teachers and color code all of your notes. This app allows you to take notes during class while keeping them organized by subject or meeting. Review your notes later and search through multiple class meetings and notes all at once. You can also keep a To-Do list by marking notes as To-Do items, or track them as assignments with a due date.
Nudge-Reminders – quick note to remember something for tomorrow:(i.e. bring pens to school, take clothes to dry cleaner, bio test tomorrow, etc). You set it and until you shut it off it…it Nudges you.
Playattention.com – Play Attention is the global leader in educational, cognitive, and behavioral interventions for ADHD